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Medical Mobility News on basic mobility, new equipment, new condition research & development such as Cerebral Palsy, Head Injury, Multiple Sclerosis, Parkinson's, Spinal Disease, Spinal Injury, Stem Cell Research as we as transportation and new mobility devices.

 

Disabled People and Social Policy: From Exclusion to Inclusion provides an informed and accessible introduction to the key issues in disability and social policy which have emerged in light of the changing approaches towards disability over the last fifteen years. The concepts of exclusion and inclusion provide the central focus around which the book is organized, and are examined in economic, social, political, ideological, moral and cultural terms. The book is divided into two parts, Part One contains the central tenets of the authors argument and Part Two includes selected extracts from published documents which highlight the issues raised throughout the text.

Americas Disability Act
   
Automotive
   
Cerebral Palsy
   
Head Injury
   
Multiple Sclerosis
   
Parkinson's
   
Spinal Disease
   
Spinal Injury
   
Stem Cell Research
   


Whether they realize it or not, journalists reporting on health care developments deliver public health messages that can influence the behavior of clinicians and patients. Often these messages are delivered effectively by seasoned reporters who perform thoughtfully even in the face of breaking news and tight deadlines. But all too frequently, what is conveyed about health by many other journalists is wrong or misleading. Some distortion is attributable to ignorance or an inability to interpret and convey the nuanced results of clinical studies. And some is due to uncertainty about journalists' proper role: Is our job to describe the bigger picture, or simply to report what is “new”? Should we present black-and-white versions of reality that lend themselves to stark headlines, rather than grayer complexities that are harder to distill into simple truths?

I believe that when journalists ignore complexities or fail to provide context, the public health messages they convey are inevitably inadequate or distorted. The news media need to become more knowledgeable and to embrace more fully our role in delivering to the public accurate, complete, and balanced messages about health. With some additional skills, care, and introspection — and a change in priorities — we can produce coverage more in line with our responsibilities.

Some health care journalists will say their paramount role is to report the “news” — strictly speaking, that which is new. These journalists tend to cover the findings of a new clinical study without much, if any, reference to previous relevant studies. For example, in 2006, multiple news reports on the Women's Health Initiative Randomized Controlled Dietary Modification trial concluded that a “low-fat” diet (in which fat accounted for 20% of calories) produced no benefit in terms of reduced rates of disease in women.1 Given the trial results, this was an inaccurate interpretation to begin with: breast cancer rates were 22% lower among women with sharply reduced fat intake than in the comparison group. Perhaps more problematically, almost no news story about this trial made reference to findings first reported in 2005 from the Women's Intervention Nutrition Study, which clearly showed that a low-fat diet reduced the risk of recurrent breast cancer among women who previously had the disease.2 Apparently, that study was no longer relevant by 2006, although it focused on the same topic. The “new” public health message for women was that dietary fat didn't especially matter.

 

More broadly, a problem that is worsening in this era of the 24/7 news cycle is the frequent failure to put new developments into any kind of reasonable context for readers or viewers. In this environment, reporters become little more than headline readers or conduct interviews that amount to a “hit and run” version of journalism. For example, a September 24, 2008, report on CBS's “Early Show” featured a 105-second discussion of transradial angioplasty. First, the interviewer incorrectly described all angioplasty as “the opening of blocked arteries through the wrist.” Then a prominent interventional cardiologist was allotted enough time to say that the transradial procedure was cheaper than traditional angioplasty and superior for most patients — but not enough time to cite the study on which his assertions were based. Completely absent was any discussion of when and why angioplasty should be done, let alone of the large, year-older study that raised important questions about whether too many angioplasties were being performed.

Journalists sometimes feel the need to play carnival barkers, hyping a story to draw attention to it. This leads them to frame a story as new or different — depicting study results as counterintuitive or a break from the past — if they want it to be featured prominently or even accepted by an editor at all. Consider news reports on the findings of the Sequenced Treatment Alternatives to Relieve Depression (STAR*D) study, reported in March 2006.3 The STAR*D study was a complicated trial designed to test treatment approaches for seriously depressed patients who weren't helped by taking one antidepressant. The results showed that 50% of patients had improvement after pursuing additional treatment steps, such as switching or adding medications, taking a higher dose, undergoing cognitive therapy, or some combination of these. Arguably, for people with serious long-term depression, this was hopeful news. Yet on March 23, 2006, the Washington Post ran a story whose lead paragraph framed the study as a failure because half the patients had no improvement: “Antidepressants fail to cure the symptoms of major depression in half of all patients with the disease even if they receive the best possible care, according to a definitive government study released yesterday.” Apparently, simply noting that half got better and half did not was not deemed sufficiently new or interesting.    
  A decade's worth of unprecedented drug recalls and other worrisome developments in drug safety or efficacy have appropriately pushed many journalists into aggressive coverage of pharmaceutical issues. Much of this reporting has been important investigative journalism yielding many benefits, including increased transparency and timeliness in reporting clinical trial results. The downside of the drumbeat of coverage, however, is the implicit message communicated to the public that many drugs on the market are neither safe nor effective — and that federal drug-safety regulators are generally incompetent.

 

 

During congressional hearings in 2004 that unleashed a torrent of this type of coverage, a safety officer for the Food and Drug Administration (FDA), David Graham, singled out five drugs on the market whose safety should be “seriously looked at.” Some newspaper reports the next day featured graphic spreads on the “Five Most Dangerous Drugs” — the acne drug isotretinoin, the weight-loss drug sibutramine, the cyclooxygenase-2 inhibitor valdecoxib, the lipid-lowering drug rosuvastatin, and the asthma drug salmeterol. Four years later, all but one of these drugs (valdecoxib) are still on the market, although black-box warnings were strengthened or added for most and a new safety-oriented distribution system was created for isotretinoin. Few news reports at the time noted that Graham's list was just that — his own personal list of worrisome drugs, not the FDA's or anyone else's. Almost no drug on the market is without risk. Web sites such as Public Citizen's WorstPills.org feature literally hundreds of concerns about dozens of drugs. One could conclude that the news media largely ignores most drug-safety or efficacy issues until, for whatever reason, a new study appears or someone shows up at the U.S. Capitol to talk about such concerns.

But so uncertain and episodic has been past coverage of drug safety and efficacy that much of the news media now feel duty-bound to report on many drug-related findings whether reporters understand them or not. A recent high-profile example was coverage of the Ezetimibe and Simvastatin in Hypercholesterolemia Enhances Atherosclerosis Regression (ENHANCE) trial.4 Although the study in fact raised questions about whether ezetimibe yielded any benefit when added to statin therapy, its findings were almost consistently misreported. Some journalists asserted that it showed the drug had no benefits in preventing heart attacks and strokes — something it certainly did not show, since heart attacks and strokes were not end points in the trial. We will never know the cost of this misinformation in terms of panicked patients or physicians who, perhaps unnecessarily, discontinued use of the drug.

In my view, we in the news media have a responsibility to hold ourselves to higher standards if there is any chance that doctors and patients will act on the basis of our reporting. We are not clinicians, but we must be more than carnival barkers; we must be credible health communicators more interested in conveying clear, actionable health information to the public than carrying out our other agendas. There is strong evidence that many journalists agree — and in particular, consider themselves poorly trained to understand medical studies and statistics.5 But not only should our profession demand better training of health journalists, it should also require that health stories, rather than being rendered in black and white, use all the grays on the palette to paint a comprehensive picture of inevitably complex realties. Journalists could start by imposing on their work a “prudent reader or viewer” test: On the basis of my news account, what would a prudent person do or assume about a given medical intervention, and did I therefore succeed in delivering the best public health message possible?    
  Although the primary responsibility for improving health-related journalism must lie with journalists, clinicians and researchers can help. When interviewed by journalists about a news development, such as a new study, they should offer to discuss the broader context, point reporters to any similar or contradictory studies, refer journalists to credible colleagues with differing perspectives, and mention any study limitations or caveats about the results, as well as any potential or real conflicts of interest among the study authors. It will take many expert hands to ensure that the health news the public reads really is fit to print.

 

 

Source Information

Ms. Dentzer is the editor-in-chief of Health Affairs, Bethesda, MD, and an on-air analyst on health policy for the NewsHour with Jim Lehrer on the Public Broadcasting Service.

The greatest danger to public health might be "checkbook science": research intended not to expand knowledge or to benefit humanity but to sell products. Much of the media coverage of health news stories is based on public relations efforts on behalf of the companies that sell the products, including pharmaceutical companies, diet clinics, or doctors selling new techniques. The author presents three case studies of how companies selling medical products effectively but invisibly shaped recent news coverage of medical products: fen-phen diet pills, breast implants, and hormone replacement therapy. All involve subtle strategies whereby physicians and other experts paid by corporate interests are influential because they are perceived to be objective medical experts. Articles in prestigious medical journals are sometimes ghostwritten by individuals paid by companies or are based on biased analyses or interpretations shaped by corporate interests. Nonprofit organizations that tout the benefits of specific medical products also may be part of the public relations efforts of the companies making the product. Meanwhile, important newsworthy studies are ignored by the mass media when corporate interests do not publicize or pitch the results to influential reporters and producers.

This paper is concerned with explaining why in contemporary society there has been a number of changes to income maintenance and labour market policy for disabled people. Taking a regulation approach theoretical framework it engages with the debate about whether disabled people can be considered to be part of the reserve army of labour. Rejecting previous broad‐brush approaches that seem to suggest that all disabled people are part of the reserve army, it argues that the policy changes have been aimed at reconstructing non‐employed disabled people as an important part of the reserve army in a period when labour markets are becoming tighter. In this sense disabled people are crucial to New Labour’s regulation of neo‐liberal accumulation that is structured through a contradiction between economic stability and increasing participation in paid employment.

Breaking bad news is one of a physician's most difficult duties, yet medical education typically offers little formal preparation for this daunting task. Without proper training, the discomfort and uncertainty associated with breaking bad news may lead physicians to emotionally disengage from patients. Numerous study results show that patients generally desire frank and empathetic disclosure of a terminal diagnosis or other bad news. Focused training in communication skills and techniques to facilitate breaking bad news has been demonstrated to improve patient satisfaction and physician comfort. Physicians can build on the following simple mnemonic, ABCDE, to provide hope and healing to patients receiving bad news: Advance preparation--arrange adequate time and privacy, confirm medical facts, review relevant clinical data, and emotionally prepare for the encounter. Building a therapeutic relationship-identify patient preferences regarding the disclosure of bad news. Communicating well-determine the patient's knowledge and understanding of the situation, proceed at the patient's pace, avoid medical jargon or euphemisms, allow for silence and tears, and answer questions. Dealing with patient and family reactions-assess and respond to emotional reactions and empathize with the patient. Encouraging/validating emotions--offer realistic hope based on the patient's goals and deal with your own needs.

 
Title: Vehicle Lifts and Ramps
Abstract: Transportation for a person in a manual wheelchair, power wheelchair or scooter involves several issues. Individuals may purchase a vehicle that has already been modified, or they may choose to modify a new or used vehicle. Ramps or lifts can be used to get wheeled mobility aids into the passenger area of the vehicle, into a carrier, on a platform, or in the trunk. There are a variety of ramps and lifts to choose from depending on the vehicle, the mobility aid, and the individual's needs. Additionally, the vehicle may need to be modified to provide sufficient headroom.
Type: Fact Sheet
URI: http://hdl.handle.net/1853/26274
Date: 2003-06
Contributor: Georgia Institute of Technology. Center for Assistive Technology and Environmental Access
Tech Connections
Publisher: Georgia Institute of Technology
Subject: Assistive technology
Ramps
Lifts
Vehicle modifications
Mobility

 

 

Research and anecdotal evidence have shown that people routinely view the ability to travel as synonymous with personal freedom and independence. For example, many older people see mobility as inextricably linked to personal image, dignity, and well-being. Other research has suggested that the ability to stay connected to friends and community is an important element to physical and mental health. Most adults equate mobility with the ability to drive; the loss of driving is seen as a handicap, which results in, at best, a change in lifestyle and, at worst, the end of life as they know it. One survey of older people at a health maintenance organization in Southern California identified losing the ability to drive as more frightening than even the loss of a spouse or the poor health of a child. Despite the importance of transportation to personal lives and society's capacity to ensure the productivity of one of its fastest-growing populations, over the last decade there has been little policy movement that would suggest serious progress in keeping an older America on the move. In this analysis, although transportation is critical to individuals and the community, there are many institutional and system barriers to policy innovation. This paper examines policy evolution and developments between 1988 and 2000, characterizes the political dynamics governing transportation policy for an aging society, and concludes with policy research recommendations that may provide new impetus and urgency to the issue.

Monograph Accession #:

00974939

Language:

English

Corporate Authors:

Transportation Research Board

500 Fifth Street, NW
Washington, DC 20001 USA


 

Authors:

Cobb, R W
Coughlin, J F

Pagination:

p. 275-289

Publication Date:

2004

Serial:

Transportation Research Board Conference Proceedings
Issue Number: 27
Publisher: Transportation Research Board
ISSN: 1073-1652
 

Conference:

Transportation in an Aging Society: A Decade of Experience
Location: Bethesda Maryland, United States
Date: 1999-11-7 to 1999-11-9
Sponsors: National Highway Traffic Safety Administration; Federal Highway Administration; Federal Transit Administration; Office of the Secretary of Transportation; National Institute on Aging; National Center for Injury Prevention and Control; Eno Transportation Foundation; AAA Foundation for Traffic Safety; Beverly Foundation; Transportation Research Board

ISBN:

0309077451

Features:

References (45) ; Tables (3)

Subject Areas:

Highways; Planning and Forecasting; Policy; Research; Safety and Human Factors; I72: Traffic and Transport Planning

Files:

HRIS

Last Modified:

May 15 2009 11:33PM

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